Karen Surgent, 32 year old female from Holmdel, NJ
I was recently diagnosed with Mucoepidermoid Carcinoma, Intermediate Grade. (on the floor of my mouth) And it has changed my life forever.
June 18, 2001 they found the tumor at my dentist office during a routine visit.
June 21, 2001 the oral surgeon removed the tumor thinking it was benign.
June 23, 2001 My 32nd birthday, spent it recovering.
June 26, 2001 I got the call, it was malignant, Mucoepidermoid. After consulting with a few Head and Neck Oncologist including Memorial Sloan-Kettering, I decided to go with University of Pennsylvania. It was a hard decision.
July 21, 2001 I had an 8 hour surgery at the University of Pennsylvania with an excellent doctor, which included removing some lymph nodes, and a huge part of the floor of my mouth. That was the definitely the hardest recovery I have ever encountered. Feeding tubes and trachea.. I had the whole works.
August 6, 2001 Results from my surgery, all clean margins and lymph nodes. However, one bad thing I have perineural invasion, so he recommends radiation.
On August 27th I will start my radiation in Toms River, NJ and am very nervous about it, the side effect will not be fun.
I'm looking for others with this rare Mucoepidermoid, I would love to hear other stories and be each other support team. I have had no luck except for Barney's story. Bless his heart. I thank you Bruce a million times over for letting me tell my story on your site.
my email: firstname.lastname@example.org
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